TREACHER - COLLINS SYNDROME
General TCS Info:
Treacher Collins syndrome (2020) Your Guide to Understanding Genetic Conditions
Treacher Collins Syndrome (2004 - 2018)
A Guide to Understanding Treacher Collins Syndrome (a publication of Children’s Craniofacial Association (2019)
Treacher Collins syndrome: Unmasking the role of Tcof1/treacle (2009)
Craniofacial Birth Defects: The Role of Neural Crest Cells in the Etiology and Pathogenesis of Treacher Collins Syndrome and the Potential for Prevention (2010)
Three-Dimensional Upper Airway Assessment in Treacher Collins Syndrome (2020)
Craniofacial Information:
Children's Craniofacial Association (Facebook)
Changing Faces
FACES - The National Craniofacial Association
About Face
Friendly Faces
International Craniofacial Institute
World Craniofacial Foundation
March of Dimes
Operation Smile
Wide Smiles
Ear/Hearing Info:
Oticon Medical (Ponto Bone Anchored Hearing Aid System)
Listen Up Web
Association of Medical Professionals with Hearing Losses
Eurion - waterproof hearing aids
Ear Reconstructive Surgery - Dr. Burt Brent
American Academy of Audiology
Bone Anchored Hearing Aid by Cochlear
Support Groups:
Yahoo Discussion - Treacher Group
When Your Baby Has a Birth Defect
Bully Free Kids
Bullying – Somebody DOES understand, and that someone is me
Cleft Lip/Palate Resources:
Cleft Palate Foundation
Cleft Advocate
Airway/Jaw Distraction Info:
Trachey Kidz NZ
Craniofacial Distraction Osteogenesis
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